Tuesday, October 21, 2014


At the end of "our" corridor there's is a panoramic view of Bergen city. But if you don't look that far, you look right down on the children's hospital. In the summer of 1995 we spent two weeks there with Geir Espen, after he was diagnosed first with Addison and then with diabetes. He was just 2 weeks short of turning 13, and facing a lifetime of giving himself shots several times a day. We were all terrified, but in need of putting on a brave face and assuring him and ourselves that we'd get through this together. The following 17 years we went back for frequent check-ups, first to the children's clinic, and later to the regular clinic, and went through countless emergency hospital admissions.

I looked back at some of the blog posts I wrote 4 years ago, when Sigve was here for the stem cell transplant, and noticed that at one point I visited Geir Espen in the ICU at Stord hospital on my way back to Bergen to visit Sigve at Haukeland. We certainly have spent a lot of time in hospitals over the years.

Today has been quiet and peaceful. Sigve had a good night without any fever, but he keeps waking up because he needs to fill those bottles, so he doesn't get the deep restful kind of sleep. 

This afternoon they started the last dosage of chemo, and it is set to flow in over 24 hours. Today's visiting doctor estimated that he will need to go into isolation some time tomorrow or Wednesday. 

1 comment:

Laura said...

Oh my friend, I know it is not exactly the same, but I have that deja vu feeling every time we go to Children's Hospital in Boston… which lately has been quite often as our daughter has been having some issues with her Crohn's and arthritis flaring. I have not posted this publicly on my blog. She was 12 when diagnosed and 9 when we first started going there for tests trying to figure out what was going on in her little body. Much love to you… and yes there are many, many prayers flowing to Sigve, to you, to your daughter and whole family during this difficult time. I cannot imaging the re-traumitization mixed with happy memories too of your lovely son Geir Espen. Too much time in hospitals we have spent my friend… and at the same time I believe with my whole heart (and it is mysterious) that these difficulties help form the people we are… kind, compassionate, patient, courageous, more loving than we could have ever imagined. YOU are such an inspiration to me.

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